datbeardyman

Less about the world, more about me.

Page 21 of 29

Column: Allowing Marie Fleming a final comfort

My column in The Kerryman. 22 May, 2013

Last month, driving home from Listowel, I heard on the radio that the Supreme Court had refused Marie Fleming’s appeal for help. I had to pull into the side of the road for a few moments. The decision was expected, but hearing it felt like a punch to the gut. I did what I usually do when I need to vent, I tweeted, “Heartbroken. A sentence of death by torture.”

Marie Fleming is a 59 year old woman, living in Wicklow with her partner Tom Curran. She has multiple sclerosis. The disease has advanced so far, she’s lost her physical independence. She has lost her ability to control her own fate. She has lost the opportunity to end her own suffering.

She has spoken of her regret at not suiciding when she had the power to do so. Her partner is willing to help her fulfill that wish. To end this horrible dying, before it is allowed its full measure of her suffering, though he risks a 14 year sentence. That is the law. Confirmed by our highest court. We deny our citizens the right due any other animal, an end to unnecessary pain and anguish. Even the farmer raising cattle for the slaughter, can be broken by the distressed lowing of his half-starved cows.

Not that pain can or should be always avoided. Pain serves an important function. It tells us something is wrong. A bone broken, a stomach empty, a relationship ended. It tells us something needs fixing. We intervene. Sometimes the intervention is nothing more than a hug and support. When we choose to ignore pain, be it depression or that uncomfortable lump, we make worse whatever is causing that pain.

Unfortunately, pain’s function is sometimes to tell us we are dying and there’s nothing we can do about it. It is the thing I fear most in life, a slow painful death. There is nothing I wouldn’t do to spare myself that ignoble end. And I hope I’d have the moral courage to help a loved one avoid such an end.

That is not to say everyone would wish to interrupt terminal pain. Many would rather wait till their natural end. Due to improving palliative care, this natural end is being made so much more humane and gentle. The wonderful people who provide these services are of such high quality and manage these natural ends so well, they can squeeze every positive experience possible from the loss of a loved one.

There aren’t many of us with the kindness and strength to do that work. To bring comfort at the end of a life, is humanity at its most noble. But it is wrong to insist a dying person be entitled to just one kind of comfort. Imagine it’s you being admitted to the hospice. Feel the full horror at that lack of choice. The lack of options. The lack of freedom. That lack of choice is the experience of those who wish to end their suffering. Coupled with the fear that their loved ones may go to jail.

The Supreme Court has left it open to our politicians to legislate for the Marie Flemings of this country. It is in the power of our politicians to allow Marie Fleming’s loving partner give her the final comfort she craves. I just hope our politicians will offer Mister Curran the comfort he’ll need.

Kerry Column 36

Column: Time for the middle to stand up.

My column in The Kerryman. 15 May, 2013

The most important advice the editor gave me about writing a column, was that I could either be a mouthy know-it-all or I could write columns which people may disagree with, but would not be offended by. I almost quit before I begun. To write honestly while trying to avoid needless provocation is not easy. It’s especially not easy for a mouthy know-it-all. It means having to see things from other people’s points of view.

When the issue is abortion? Well it can seem like giving and taking offense are the whole point. The terms used by the meekest pro-lifer and the most restrained pro-choicer, are usually the most extreme available. Most of us when arguing about anything else, will leave the really heavy language to the rare times when we want to get very nasty.

In a debate between a pro-choicer and pro-lifer it quickly gets vicious. Pro-lifers (or anti-choicers to their enemies) will hint or out-right state that abortion is the murder of babies. Pro-choicers (or pro-abortionists to their enemies) will demand to know if raped children should be forced to have babies. This is no ordinary war. The nuclear weapons are brought out every single time, leaving everybody devastated.

Cards on the table; I am pro-choice. Very pro-choice and I’ll argue with anyone, anywhere, anytime defending that point of view, but a column is not an argument. You can’t shout back at me when I shout at you. That can be OK on almost any other issue, but not abortion. I can hector the pro-lifers, bully the undecided and play to the pro-choice gallery, but what happens next week? What happens when I want to offer my opinion on how to help those in mortgage distress or explain why I love hurling?

I will end up speaking only to those who see the world as I do and I know that number to be very small indeed. What point is there to writing if no one reads what I write? Worse, why write if I’m so predictable, no one need read it?

Yet I’m pro-choice, with a column, during a national debate on abortion. How do I write honestly without offending someone? Simple answer, I can’t. This debate is so horrible, that just by declaring a position, I offended. No doubt, I’ve already forever lost some readers.

That stings, for there’s nothing and no one, so in need of attention than a writer. Nothing so hurts a writer than not being read. Yet I am pro-choice, with a column, during a national debate on abortion.

I’m so pro-choice, that I feel a knot of anger in my belly anytime I hear a pro-life spokesperson make a point. I’m so pro-choice I often avoid abortion debates for fear I will lose friends and alienate loved ones. That’s how strongly I feel. A strength of feeling, a passion, a calling, that I know is also felt in the hearts of those I call opponents, pro-lifers.

Our only hope, my only hope, is there being enough people so passionately dedicated to finding a middle path, that the rest of us are finally pushed to the sidelines. Our only hope is the middle-roaders drowning out our noise. The silent must find their voice, or this fight will never end.

Kerry Column 37

Column: Community trumps guns

My column in The Kerryman. 8 May, 2013

Deputy Michael Healy-Rae’s recent call for more liberal gun laws for rural dwellers made me think of the film, Braveheart. It’s about William Wallace’s war with the English King, Edward Longshanks, the Hammer of the Scots. Edward never conquered Scotland, making the title Hammer of the Scots, undeserved. He did conquer Wales. Conquered it and pacified it so successfully, it never again seriously contested English rule.

Edward won by building castles. Each castle was built to support the other castles. Attack one and you’d soon have an army at your back. It was common to build forts in enemy lands, to keep a conquered people under the thumb. The Romans did it and all over Ireland there are Norman keeps and castles, built to suppress us natives.

The only thing that’s changed since, is the architecture and the distance between each fortification. Before the War of Independence, British rule in Ireland was maintained by a huge number of Royal Irish Constabulary barracks. Then of course, support arrived by bicycle, today it’s by car.

Edward built his castles big, not just for defence, but to remind everyone who was in charge. Our Garda Stations, aren’t big or impressive but they have the power to make people feel more secure. In sparsely populated areas of Kerry, among the elderly and those living alone, that feeling matters. Matters more than a money man in Dublin can ever know.

Great anxiety is being experienced in rural Ireland. The economy, emigration, the woes faced by farmers due to the awful weather, the silent agony of isolation and the growing perception that we are being increasingly victimised by organised gangs of criminals have led to feelings of abandonment and desperation.

So bad do people feel, the calls for more guns seems reasonable. I may be a soft liberal type, but I’ve no problem with the idea that a man forfeits his life if he comes into my house, my castle, uninvited. The problem is with the practicalities of this principle. Australia once had a very pronounced gun culture. In a country full of voracious wildlife and where the nearest police officer might be a plane ride away, having guns seemed perfectly sensible.

In the 90s however, they decided that they’d suffered one too many massacres, so they came down hard on gun ownership. There hasn’t been a massacre since. Gun homicides, accidental deaths and suicides have been reduced. If we invite more guns into rural Ireland, we can be certain that death will follow in their wake.

Guns are the wrong answer to the wrong question. All they’ll succeed in doing is creating a whole serious of little castles, defended by gun toting scared men. That is not security. That is the opposite of security.

But security we must have. Michael Healy-Rae understands this. I may disagree with his solution, but he knows a fear exists. Kerry has five other TDs and a few dozen councillors. Perhaps it’s time they all sat down together and listened.

Listened and reassured. Not all the fear being experienced is justified. Yet statistics are cold comfort to those living in fear in isolated parts of the county. Statistics are no comfort to those who become the statistics.

Nothing can breach the walls of a strong community. No threat nor disaster can bring those walls down, but our dozens of paid representatives need to be on the walls with us.

Kerry Column 38

Letter to Indo re Labour Party

It was with a sense of shock and bewilderment that I read in the Sunday Independent (April 28) of the outing of the Labour Party as a pro-choice organisation. As a pro-choice member of Fine Gael, I am outraged that I didn’t already know Labour is pro-choice. Further, I am appalled that just like me, members of the Labour Party see the ludicrously restrictive x-case legislation, as merely a stepping-stone towards the ultimate goal of Irish women, winning the same level of physical autonomy that Irish men already enjoy.
Also the Pope is Catholic. And bears relieve themselves in wooded areas. Except of course for polar bears. They live on ice-packs, so no trees. Oops, did I state the blindingly obvious? Though I don’t mean ‘blindingly’ in the literal sense, or else you wouldn’t have been able to read this sentence.

Indo Letter 05-05-13

Column: Losing our young men to suicide

My column in The Kerryman. 1 May, 2013

It’s difficult to escape the growing gloom regarding suicide in this county. The South Kerry coroner Terence Casey spoke again last week about the truly frightening number of young men who are being lost to suicide. The overwhelming tragedy that these young men leave in their wake, is mirrored in the stunned confusion of those of us left behind. There can even be anger and accusations of selfishness leveled at the departed.

How many of us have felt the bewildering anguish of depression? To be gripped by an emotional pain so intense, that it feels like a physical ache. To have an ever present knot of anxiety in the belly. The tension in the chest so tight it restricts breathing. Eyes that feel filled with sand, as one battles both insomnia and lethargy.

How does one explain that for no obvious reason, the prospect of nonexistence seems so much more attractive and easier than to continue enduring this waking nightmare? If one is an apparently healthy young man, it is especially difficult to put into words, why instead of feeling the immortal arrogance, common to young men, one feels the agonising pang of despair.

We are failing to identify suicide for what it is. A catastrophic symptom of depression. We are failing to identify suicide for what it is. The end of an illness, that could have been treated if only the shame had been replaced with the firm knowledge that this a treatable disease. We are failing to identify suicide for what it is.

Our young men are being lost in a resource war. They are being lost because we are failing to provide them with the two things they most desperately need, the words to explain their pain and people to understand those words.

This failing is particularly galling in this post-embarrassment age. Now we speak and laugh openly about fingers being stuck up old fellas bums. Prostate cancer is an easy to understand disease. We know how to find it and to treat it. There is no shame in a prostate exam.

Everyday there are ads in newspapers, on TV and on the radio, urging us to check our poo for blood. Colon cancer is an easy disease to understand. We are told to check our testicles, check our breasts. Have our moles examined, have smear tests done and to cough as the doctor checks for hernias.

There are ads for viagra. Lubricants, condoms and toys of all descriptions are available to those who want or need them. Embarrassment is no longer the norm. There are ads for incontinence pads, sanitary towels, tampons, adult diapers, haemorrhoid creams and ointments for thrush. The days of suffering in silence, of brown paper bags and shame are gone.

Yet for one of the young gods that grace our playing fields to admit to depression, is still a hurdle too far. Depression, like any disease, will take its share of victims. This is inevitable. But the numbers currently being lost is unforgivable.

We inoculate babies to save them from the ravages of measles and polio. The best inoculation we can provide for depression, are forewarning, the words to explain and an environment in which to be sick and recover. No one accuses a cancer victim of selfishness, we need to extend the same understanding and love to those suffering depression. It’ll help save lives.

Kerry Column 39

An emotive clinging to prejudice

The Constitutional Convention recently had to address the issue of marriage equality. It attracted a great deal of attention and submissions. Even I had a go. The Convention ended its deliberations by overwhelmingly voting to recommend steps be taken to facilitate full marriage equality in this country. As expected, the entire process was quickly called into question by the opponents of equality.

While they were lambasting the process for not following its recommendations, the anti-equality think-tank, The Iona Institute, was being criticised for the misuse of a study on family trends. This crass ploy has been loudly and severally commented on. Follow these links, herehere and here to read about what was attempted by Iona.

I don’t wish to add to the quality commentary already made by other bloggers. I want instead, to highlight something that Iona Director and Irish Independent columnist, David Quinn, wrote in his response to being called out for this misuse of data.

I draw your attention to these few lines;
“The available data does not allow us to say how well children raised by same-sex couples fare compared with the biological married family.
It would be invalid, therefore, and a misuse of the Child Trends paper quoted above to pretend the available research shows that children raised by same-sex couples do worse than children raised by their own married, biological parents…

And to this day it remains the case that there are no large national surveys that allows us to draw reliable conclusions about the children of same-sex couples.”

An admission, that at best the only position one can take on marriage equality, if one is to rely solely on the best available data, is one of agnosticism. A remarkable concession for someone from a conservative anti-equality organisation to make. It is a tacit admission, that adopting a homophobic stance, is not a reasoned and scientific decision, reached after much investigation, but a confessional and reactionary position, rooted in the doctrinaire homophobia of the Roman Catholic Church.

Of course this lack of evidence works both ways. Gay couples have not been around long enough, nor exist in large enough numbers, for the kind of definitive studies which get taken seriously by dry academics and disinterested policy-makers. What those of us who are in favour of marriage equality have are, positive small scale studies and a particular view of history that indicate this, is the time to embrace change.

In the liberal democracies of western Europe and the Americas, changes to how we treat the vulnerable have always been incremental and careful. And these changes have consistently had to contend with the forces of inertia, prejudice and vested interest. Fortunately progress continues to be made.

Children no longer work down mines in horrible conditions. Today, even adults working in mines are afforded a level of safety unimagined a century ago. Women have moved from chattel to being almost equal with men (they still lag behind in financial and political power and continue to lack the kind of physical autonomy men take for granted, but progress to date has been transformative).

Slavery has all but disappeared in our liberal democracies. Where it remains, it is deep underground in the criminal world. Non-whites are legally the equal to white people in every way. Economic power remains centered in white elites, but again, property to citizenship is unquestionably a dramatic advance.

We once discriminated on grounds of religion. For centuries sectarian hate scarred and scoured our lands. Today things are so much better that it is now even safe to be an atheist. Have we achieved a truly secular democracy? No. The various sects still have an inordinate amount of political clout, but step by step, they are being excluded from the lives of those who do not wish to endure their interference.

Gay people have moved from the status of criminals to the cusp of gaining full marriage rights. They suffer rates of mental ill-health and abuse above the rest of us, but increasingly the homophobes who inflict this emotional and physical distress are being faced down.

Again and again the law is changed to demonstrate our growing empathy and humanity. And again and again there are those who rail against this desire to respect the marginalised, to empower the hated, to embrace the other. No study was required to demonstrate that treating another human as property was innately disordered, that is lessened us all. No scientific data is required to show that inhumanity begets inhumanity. No statistics need be examined to show that witless prejudice risks vicious impunity.

Quinn and his ilk have been, for centuries, on the wrong side of history. The narrowness of their vision and the spite they spew is insidious because it can delay and it does wound. But the ultimate demise of this vision of hate is all but assured. He doesn’t have the science, he doesn’t have the numbers, he doesn’t even have the confessional power his Church once wielded. All he has is a desperate and an emotive clinging to a prejudice.

History will not be kind to him, but he has succeeded in one thing. I now feel sorry for him. How could I not? For he has lost.

Column: Why choose homeopathy?

My column in The Kerryman. 24 April, 2013

It’s twenty years since I was in Tralee General for an endoscopy. They shoved a camera down my throat to look at my stomach. OK it wasn’t that bad. They’d given me some meds, which had me grinning like a fool throughout.

They looked at and took a sample of my stomach lining to test. I had the procedure because for two years I’d been suffering from indigestion, stomach pain and was throwing up blood. There was very little drama involved though, as we all knew what we’d find.

It’d be duodenal ulcers and a bacteria called helicobactor pylori. This is a common bacteria, identified in 1982 by a couple of Australian doctors to be the main culprit behind ulcers. No one had previously thought bacteria could survive in the acidic world of the stomach. They completely rewrote the medical books on the subject and got themselves a Nobel Prize too.

This is important because instead of being diagnosed with a chronic and life limiting condition, as ulcers once were, I was instead diagnosed with a curable disease. I was given a course of drugs and the pain ended. More importantly, it wasn’t necessary to see a Dietician, who’d have explained to me what white foods were e.g. boiled chicken. Shudder.

These days if someone suffers the same symptoms I’d had, there might be a temptation to visit a homeopath. This form of alternative medicine became very popular during the Boom. Almost as popular as buying holiday homes in Bulgaria.

Not that I’m suggesting homeopathy is a ridiculous and futile waste of time. Each of us is free to spend our money as we see fit. Each of us is free to seek whatever advice we want. It is however important to inform ourselves about how best to make a decision regarding our health.

On the one hand we have overpaid and arrogant Consultants. A bunch of largely conservative men who were slow to accept the existence of germs, the best way to treat polio, that woman could be doctors and who even today still lag behind nurses in hand hygiene. A bunch men tied to the not always honest, multi-billion euro drugs industry.

Then there are the homeopaths who sell pills that are so diluted, no active ingredient can be detected. Homeopaths claim that the more dilute something is, the stronger it is. Good luck convincing your mother that the weaker something is the stronger it is, when you next make her a mug of tea. She’ll quickly explain to you what weak really means.

To prove a drug works, we use a double-blind test. This means randomly dividing a group into two, one of which is given the experimental drug. Those being tested, don’t know what they’ve been given. Even the doctors and nurses giving the drugs don’t know. It’s a pure test.

This is the gold standard. They terrify drugs companies because they may have billions tied up in the development of just one drug. If it fails the double-blind, then that company could go under.

Homeopathy, despite being around for over two centuries, has yet to prove itself to be a credible medication. In spite of this, you can still buy them, since a pill with no active ingredients isn’t harmful. One cannot overdose or have bad side-effects taking what is essentially nothing.

Remember that when you feel let down by your doctor. See a second and even a third doctor, before giving in to the alternative.

Kerry Column 40

Column: Power in numbers, even if on the dole

My column in The Kerryman. 17 April, 2013

I grew up during the 80s in Kerry. I was old enough then, to know there wasn’t much in the way of work and that a lot of people relied on the dole. I also knew I had a lot of relations who had been forced to emigrate in search of work. Every Christmas they would send back parcels of clothes, that very rarely fit. I could never understand how the Americans got to grow so big.

I wasn’t old enough to know if money was being sent back, but we do know that millions of dollars was sent to the families left behind by emigrants. Often this was all that kept a family afloat during the many recessions this country has endured. During the ‘boom’ we thought those days were forever behind us. So far behind us that men and women from all the world flocked to these shores, so that they too could send money back to their relations.

Unfortunately the boom was so shockingly mismanaged our sons and daughters are again leaving Ireland to find work. Once again many of those left behind are existing on the dole. So many men and women who were once working, now have mortgages, have children in school, have ambition, but are forced to take the help of social welfare for their needs and the needs of their family.

Having been on the dole twice in the last 20 years, I know how entirely powerless one can feel, when one is relying on strangers for just enough money to get through the week. But I certainly don’t know what it’s like to be on the dole and have a family to support and a mortgage to pay. That kind of nightmare has fortunately never visited me.

I also don’t know what it’s like to be classed as ‘long-term unemployed’ which means being unemployed for over a year. Where does one find the discipline to maintain a routine, when one is unemployed for that length of time? Yet 44% of our unemployed family members, friends and neighbours, are now in that situation.

Worse, many of them have skills which are no longer needed in our economy. A lot of the jobs being created these days require language skills and computer skills that too many of our unemployed people just don’t have. Companies from all over the world, attracted by our favourable tax regime, set up shop and then have to import qualified workers to fill the many vacancies they are creating.

These new people enrich our state and our culture, but having to attract workers from outside Ireland doesn’t do much to address the immediate problem of our near 15% unemployment. Students are doing their bit by increasingly applying for the kind of courses our economy now needs, but they are at least four years away from being suitably trained.

So what now for the men and women trying to survive on social welfare? It seems sympathy for these victims of the political mismanagement of our economy, is already on the wane. Our government beats the drum of welfare reform, while helping politicians to pay for their constituency offices.

If there is one thing unemployed people can do to help themselves, is realise that any group with nearly half a million members, is a group with a lot of power. Pensioners realised this years ago. It’s about time unemployed people copped on to this as well.

Kerry Column 41

Mourning a Sister.


Last week I wrote an article
 about Organ Donor Awareness week. A friend from the twitterverse then contacted me to share his story.  

This is the story of my sister’s organ donation. I have changed some facts so as to protect the identities of those that I love. But it’s the story from my perspective, the only one I can tell. I will refer to my sister as Anne.

Just over three years ago, one Tuesday evening my sister called me to tell me that Anne who lived in America had suffered an aneurysm and was in hospital with probable brain surgery to happen any second. None of us had any idea what this really meant but brain surgery is never going to be an appendix operation. Bear in mind, I may have some of the fine details relating to medical procedures wrong, but that’s ok, I don’t pretend to be a doctor.

We learned very quickly that effectively there was a weakness that had always been there in her brain that for some reason popped, increasing pressure in the areas around it. She had been brought to hospital and after an initial period of lucidity passed out. She never regained consciousness.

She had three operations but effectively too much damage had been done and parts of her brain had been deprived of oxygen for too long for it to hope to recover. This all happened over the space of about a week. Our family travelled within days to be with her and her family. Even before I left I knew that there was no hope of her ever coming back and that the best that we could hope for was for her to survive in a vegetative state on ventilators etc.

When I got there it was a terrible thing to see, this strong, independent woman a shell of herself. Half her head shaved and dented where they had operated and put part of her skull into her stomach cavity (to maintain blood supply should they be ever able to replace it). Unable to feed herself, surrounded by tubes and machines that go bing. Despite it all, there was laughter, knowing she wasn’t coming back there was still laughter through it all. Tears and unspeakable grief but still laughter.

When it became obvious that she could not live independently of the machinery, we all agreed that we could not possibly bring what was left of her home, to maintain her body when her personality, her “herness” was gone forever. She had said to her family that she would never want to live like that and we knew that we just had to let her go. At this point we brought up the possibility of organ donation and timelines to switching off her life support. The staff at the hospital were amazing. No avoiding any hard truths, but also full of compassion and respect. Wonderful people. From the surgeons to the orderlies, the front of house staff to the two ladies who looked after Anne 24/7, wonderful people all. Sometimes I think about these guys and the power of what they do. The strength of these people. The decency.
We met with the Organ Donor representatives who explained all the potential outcomes, what needed to happen and by when, to allow her organs to be useful to someone else. We also dealt with the hospital’s ethics committee who were wonderfully compassionate and helpful. There was paperwork and discussions and more paperwork and more ethics meetings but over a three day period the decision was made.

When the time came we all knew that when they took her off ventilation that there was a possibility that she could go into arrest immediately, within hours or it could be that weeks could pass. There was an outside possibility that her body could continue for years without support.

For her organs to be donated there was a window of one hour from the removal of ventilation to the point where the organs would have been so depleted of oxygen that they would have been rendered unusable.
We said our goodbyes and she was taken away.

We had been offered but declined two places downstairs where the organ donation team were ready, it was a small area and in my mind’s eye I could see a team of surgeons, doctors and couriers with iceboxes, ambulances outside with their engines on and across the city, potential donors and their families ready to go to surgery.
At this point, our sister was well gone. All that was her had fled. What we had was not really her and could never be again. What was her was broken. We were waiting for the inevitable. Part of me wishes that I had stayed with her until she died but there is a difference between talking about “harvesting” and witnessing it.

A representative from the Donor organisation stayed with us while her colleague had left to be on hand when Anne’s ventilator was removed and I guess we all relaxed as much as we could. However, 15 minutes after we were told that she had been taken off life support, the rep’s phone buzzed. She looked at us and told us that Anne had arrested. There was a second or so pause while it sunk in and then, release.

We knew then that she would be declared legally dead and her body operated on. I don’t dwell too much on what that must have meant. I know intellectually it’s just a corpse and of course she had already gone, her mind had already gone before her body did, but I can fully understand another view that could consider this process horrific. But, then I think of what I know now and it helps me with my grief and makes me smile and be continuously proud of my sister. Helping others even after her heart had stopped beating. Typical of her.

We stayed at the hospital, sitting in the room she had been in for nearly two weeks only with no bed, no tubes, no machines, for only another ten minutes or so. The arrangements had already been made with a local undertaker and to bring her body home even before she had died.

Both her kidneys and her liver were successfully transplanted the day Anne died. Saving three lives. Her eyes and bone marrow were also donated, but I am to this day still unsure of what happened, whether they were donated or simply used in experiments. But all to the greater good.

After the dust has settled and life does go on, as the cliche goes, I am proud of my sister, that her final act benefitted others.

So, organ donation? Tragedy happens all of the time. This was a natural one, a fault in her brain that would pop one day. I can understand that. I can put it somewhere. To lose someone to a drunk driver or an act of violence… I don’t know how anyone can cope with that. But cope they do. But, in my case, from where I sit, the tragedy that occurred to us, to lose someone so precious has turned into an occasion of happiness and pride. Knowing our loss became a gain, a rescue, a lifesaving event for at least three other families makes my heart burst with pride for my sister.

The grief, brought to the front of my mind through the action of writing this, will always be there. But it genuinely is tempered by the happiness and second chance it has brought others. I’d always carried a donor card, always believed that it was the right thing to do, to donate your organs should the unthinkable happen, but I had never expected to be involved on what I call “edge” stuff, to be right there in the middle of it.

The gift of life my sister gave does not necessarily impact the grief of some but it has worked for me. Through it all, there’s happiness that others benefitted. Maybe I bury my grief with this, maybe I mask it but I grieved terribly for her before her heart had even stopped. I know that this is not a reason to encourage donations in general as if doing “this” will assuage “that” and it’s not the reason our family chose to be involved in the donation. But it is true anyway.
I don’t believe that organs should be state property, or even that an opt out system should apply, the decision that was made in our case was and is empowering. All I would ask is that people think about it. Whatever is right for you, is right for you, but at least think about it and be comfortable with it. I don’t think less of those that don’t carry the card, download the app or tick the box on their drivers license, as long as that’s a decision that they’ve made, rather than a default setting.

Maybe one day I will meet those that have my sister’s eyes, kidneys and liver inside them. Maybe someone else looking through her eyes at me would freak me out, perhaps kidneys and liver only then. And, they’re not my sister’s anymore anyway. They are a vital part of someone else who has been given a second chance at life.

I am not superstitious or religious, nor do I believe in divine intervention one way or the other, but there’s a part of me that likes to think that before Anne was brought down to the operating theatre and we had told her to let go, that it was ok to, that she knew somewhere inside she had to let go to make a difference even though she no longer had the capacity to do so. I wish that were true and that I could know it. That she chose to let go for others.

But whatever her intention or otherwise, people live today that otherwise would not. I know very little about them, vague occupations, family statuses and locations but it is of no matter. They live.

I miss my sister terribly and always will, she was something else. You would have liked her.

Column: Donate your organs

My column in The Kerryman. 10 April, 2013

Just before last Christmas I had myself subjected to a series of expensive medical tests, to see how my heart was doing. Approaching 40, over weight, an only recently reformed heavy smoker and a dodgy family medical history, led to me to think it would be best to have a quick look at the engine, to see if I’d done any real damage up to that point. Fortunately I got the all clear.

By all clear, I mean the complicated algorithm into which the consultant fed all my details, said, that I have a 5% chance of a heart attack. I’d have to be over 13% to merit medication. Dodged the bullet as far as I’m concerned. Not that I’m resting on my laurels. I’m still off cigarettes, I’ve lost over 6kgs since the tests and I’m exercising more. I can confidently say, that I’m probably now at less than 5% risk of suffering a heart attack.

Does that mean I definitely won’t have a heart attack tomorrow? No. The only people who are at 0% risk, are the already deceased. The rest of us must labour on knowing, that as we get older, the chances of suffering heart disease, or any other life ending or life altering condition, is always increasing.

Ultimately that 5% figure is meaningless. We are all educated enough these days to know what we must do to lower our chances of getting heart disease. It’s boring stuff. Move around more, eat less fun foods and stop hammering into the alcohol and smokes. We can do all that but we also know, that no matter how good we are, sometimes our genes just won’t play ball.

When we eat ourselves into heart disease or when our genes let us down, we are fortunate enough to be living in an age, where medical science can do remarkable things to save people who only a decade ago, would be facing death. There are surgeries and there are medications, which can cure or alleviate. They can even replace your heart! Think on the wonder of that. They take a heart from someone else’s body and put it into your chest. And they make it beat again. Perhaps we watch so many medical dramas on TV, that the mad wonder of replacing a heart is lost to us.

The first human to human heart transplant, took place in 1967. The surgery was performed by a South African doctor, called Christiaan Barnard. That’s how recent it was. Less than 40 years ago. Only a few years before that, the first lung transplant was carried out. The first kidney transplant took place in the 50s.

There was a high mortality rate in these early surgeries because they didn’t know how to stop the patient rejecting the new organs. Once immunosuppressive medications were developed, transplants became the everyday wonder we know today.

The next step is probably going to be the ability to grow blood and organs from scratch. Imagine that. Having replacement parts grown to order. No more waiting for years for a new kidney, or watching a child die as no suitable heart can be found for transplant.

Today however, the biggest problem these modern wonder workers face, is a lack of raw materials. And by raw materials I mean us, our organs. Remember that and then have the difficult and unpleasant conversation with your family. Let them know with 100% certainty, that every part of your body that can be used to help a living person, had better be used. Or else…

Kerry Column 42

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